Within 20 minutes the big doors opened and another nurse came to pick me up. Since I was in a rental wheelchair that you can't operate while sitting in it, she had to push me to the ER room, where I was assigned to a cubicle surrounded by curtains. I laid down in a bed and waited for everything that was going to happen. Because there were only curtains around the 8 cubicles that were in there, I could hear everything that was happening, which doesn't actually put your mind at ease I can tell you.
After a while another nurse came to take my blood. Finally I was getting my blood work done. But I had also read that GBS can not be determined from a blood examination. However it would rule out all possible other things.
Then for a long time nothing happened in my cubicle. Finally the ER doctor came to me. A young fellow who couldn't have been out of school for long. Now I don't mind that because in my personal experience they are more determined and focused than the doctors who have been doing this for decades. He started asking me questions.
He then did some neurological tests with me, I had to stand up as well as I could, stand on my toes (which I obviously couldn't), lay down and push him away with my feet (which I could surprisingly well). And I told him everything I was suffering from.
Finally he looked in to my eyes and said "You are afraid aren't you?", I replied "I'm terrified". He asked me why and I told him that I feared to be suffering from GBS. I could tell from his eyes that he took my concern serious, but also that he didn't think I was right. Being such a rare disease I can't blame him, but I was hoping very much they would act as if it was a possibility anyway.
In September 2016 I was struck by Guillain-Barré Syndrome. This is the story about how my life changed forever, in just one week.
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