Saturday August 27th 2016, I wake up on the couch again. I can immediately tell it has gotten worse. My legs feel weird, my arms feel weird, and what is up with my eyes? They feel weird too.
My mother in law wakes up and comes downstairs, after spending the night with us because she was worried about me. I managed to place myself in the garden before she woke up so she finds me there. The first thing she says is: "What is wrong with your eyes?". I have no idea, but I can feel it. Every time I blink it feels so weird. In a while I will find out that this is because when I blink, my eyes are not fully closing causing my eyes to become dry.
She insists I go to the ER right away. I tell her I don't want a strange doctor and I want to wait until Monday to see if it might improve. She calls me stubborn (and she is right) but she agrees.
Sunday August 28th isn't much different from the day before, but I can still tell that things are progressing in a negative way. I must go to the doctor tomorrow.
Because by now I have regained some sort of calmness, I start Googling for the symptoms I am experiencing. I had done so earlier in the week, but because it was only 'pins and needles in feet and hands', I didn't find anything conclusive.
This time I was searching for 'Pins and needles hands and feet, weak legs, weird feeling eyes'. And slowly I started to get results pointing to a thing called 'Guillain-Barré Syndrome' (GBS). Well there's something I had never heard about! Which is not weird when you realize that only 1 in a 100.000 people a year suffer from it, it's extremely rare.
I started reading more and more about this Syndrome, the symptoms and the prognosis. This was exactly what I was experiencing! But if this was what I had then I was in for a very dark ride. I read about the usual course of this GBS and things were looking bad.
In September 2016 I was struck by Guillain-Barré Syndrome. This is the story about how my life changed forever, in just one week.
Thursday, December 28, 2017
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